Just Ask
Suffolk Carers Matter has come about from a mixture of carers, charities, health organisations and community groups in Suffolk wanting to do more and something different.

We are fully embraced with understanding that a carer’s life varies each day and the challenges faced/need for support can come any time of day; morning, noon or night!

We’re jam-packing our support online here, across other social media @Suffolk_Carers and In The Community. It’s growing and growing, with more becoming involved and welcomed.

One of the key parts to Suffolk Carers Matter, is helping carers who may not have the time to find something out or need support and are not sure where to go; Ask us and we’ll help.

We know what it is like as a carer, many of us here are one too.

Good To Know

EHCP’s- What are they? How can you get one? What do they mean?

We’ve come across many Parent Carers who have concerns about their child’s education. The Children and Families Act secures the presumption of mainstream education in law. This basically means that every child has the right to mainstream education unless it is proved that their needs outweigh what a mainstream school can reasonably give.

So, what is an EHCP?

EHCP stands for Education, Health and Care Plan. It is a legal document that outlines a child or young person’s special educational, health and social care needs. The Plan will detail the extra help that the child/young person will receive in order to fulfil their potential and achieve what they want.

Who is eligible for an EHCP?

The child/young person must be aged 0-25 and have additional needs which are impacting on their education.

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The Pod

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Carers Of Suffolk

Rebecca

I am mum to George, a teenage lad with a muscle wasting condition called Duchene Muscular Dystrophy. DMD is progressive and therefore the level of care he needs increases every year. We had some struggles with schooling but have been lucky to have an experienced and diligent team of health professionals on board.

As a carer I have endeavoured to keep working part-time but often feel pulled in two directions (time off for appointments, paper work, EHCP meetings, wheelchair assessments, splints). It is upsetting that he is not able to hang out with boys his own age and is losing his independence as his peers are increasing theirs. I would love for him to be able to access a suitable youth club.

 

Leila

I’m Leila, myself and my husband have Drew aged 8 and another son aged 6. Drew has severe epilepsy, global development delay and attends a SLD school. Drew cannot communicate verbally, babbles and learnt to walk at the age of six and a half, more of a toddle. He can only do this in a safe environment. His seizures and learning difficulties make doing day to day things quite hard, even getting to school can be a struggle. Drew needs help with every aspect of life, personal care, playing, feeding, changing, bathing etc. He cannot be left unattended anytime due to his health conditions. He is on a complex medical diet called the ketogenic diet and has a gastrostomy.

We love family days out, holidays like Centre Parcs, walks and lots of swimming works wonders. We don’t tend to go out at the weekend often, and only stick to activities that suit our time limits, attention and ability. In our area there are more clubs for mainstream children. We would love groups benefitting us as a family, sibling care support groups also. Both my husband and I work, therefore feel out of the loop on what services are available.

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Quick Food For Carers

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Me Time

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News & Media

News Title Here
Monday 9th March 2018

I am mum to George, a teenage lad with a muscle wasting condition called Duchene Muscular Dystrophy. DMD is progressive and therefore the level of care he needs increases every year. We had some struggles with schooling but have been lucky to have an experienced and diligent team of health professionals on board.

 

News Title Here
Monday 9th March 2018

I am mum to George, a teenage lad with a muscle wasting condition called Duchene Muscular Dystrophy. DMD is progressive and therefore the level of care he needs increases every year. We had some struggles with schooling but have been lucky to have an experienced and diligent team of health professionals on board.

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