According to BBC News today there are 6.5 million people in the UK caring for loved ones. So what happens when these loved ones die? As well as the grief of losing that person, carer’s are suddenly devoid of the caring role that may have consumed their lives for months, even years. Carer’s say that a lot of the time support just falls away after their cared for dies and this can compound the grief further. Helen, 84, talking to BBC News said ‘There’s a void when that person you’re caring for dies. Many of my friends who have gone through this too have fallen into it, the black hole which is left behind.’
There also financial implications as benefits such as Carer’s Allowance, Tax Credits can suddenly stop. And there’s a loss of purpose too. Carer’s have developed so many amazing skills and such valuable experience during their time caring and they can sometimes feel that there is nowhere for that to be channeled now. They have gone from having no time to too much time.
If you are a bereaved carer in Suffolk then please see the following links for support.
The MP Baroness Tessa Jowell died on Saturday 12th May from brain cancer, aged 70.
Her death has led to Theresa May confirming that the government will double their investment for brain cancer research to £40m. The PM said she hoped this would ‘create a lasting legacy.’ Cancer Research UK will also contribute £25m to the Dame Jowell Brain Cancer Research Mission.
Currently 11,400 people in the Uk are diagnosed with brain cancer each year. Only 14% of these people survive for ten years or more.
According to BBC News there will also be an annual global conference, hosted in the UK, The Tessa Jowell global symposium bringing together scientists, clinicians and academics to discuss the research into and treatment of, brain cancer.
The annual event was organised by AnnaKennedyOnline ‘forging a path to autism awareness’. Anna Kennedy OBE founded the charity after her own experiences with her two sons who have autism. After they were diagnosed she struggled to get the right help and education. In 1999 Anna decided to start up her own school, Hillingdon Manor, now a forerunner in specialist education provision.
According to Charity Today (www.charitytoday.co.uk) one of the many emotional parents in the audience said of the show: ‘To have a platform like this when the world is telling you your kid can’t do this and can’t do that is just incredible. People with autism are amazing and assets in our society.’
Thank you to featurepics for the use of their image.
On Saturday 2nd June, FestABLE took place at National Star College in Cheltenham. It is the first time a festival dedicated to specialist learning has been staged in the UK. There were all the usual aspects to a festival such as live music and chill out rooms and it was all fully accessible. Other features of the day included the country’s only wheelchair accessible hot air balloon and the opportunity to play with eye-gaze controlled computer games. There were also sessions on SEND reform, early autism intervention, EHC plans and removing barriers to achievement.
The award winning writer and actress Sally Phillips headlined the festival. Phillips has a son with Downs Syndrome and shared her experience and her views: ‘We are sitting on a treasure chest in the SEN world. Having a child with special needs enables parents to understand and appreciate the important things in life.’
Other guest speakers included the social care ombudsman Nigel Ellis and Max J Green who has 3500 followers on You Tube where he talks about his Asperger’s. There were also several parents and young people who spoke.
The event was a huge success- keep an eye out for next year’s FestABLE!
Thanks to FestABLE for the use of their logo.
Thank you to Clipart for the use of this image.
Merryn’s family hope the results of the inquest will change attitudes to ME. It is only the second time such a conclusion has been made in the UK, according to the ME Association.
To find out more check out https://www.manchestereveningnews.co.uk/news/greater-manchester-news/young-woman-who-spent-years-14678759 and http://www.meassociation.org.uk/
Thanks to ME Association for the use of their image.