11th June 2018
Who cares for the bereaved carers?

According to BBC News today there are 6.5 million people in the UK caring for loved ones. So what happens when these loved ones die? As well as the grief of losing that person, carer’s are suddenly devoid of the caring role that may have consumed their lives for months, even years. Carer’s say that a lot of the time support just falls away after their cared for dies and this can compound the grief further. Helen, 84, talking to BBC News said ‘There’s a void when that person you’re caring for dies. Many of my friends who have gone through this too have fallen into it, the black hole which is left behind.’

There also financial implications as benefits such as Carer’s Allowance, Tax Credits can suddenly stop. And there’s a loss of purpose too. Carer’s have developed so many amazing skills and such valuable experience during their time caring and they can sometimes feel that there is nowhere for that to be channeled now. They have gone from having no time to too much time.

If you are a bereaved carer in Suffolk then please see the following links for support.

Living with bereavement


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Monday 14th May 2018
Tessa Jowell, 'A Lasting Legacy'
Monday 14th May

The MP Baroness Tessa Jowell died on Saturday 12th May from brain cancer, aged 70.

Her death has led to Theresa May confirming that the government will double their investment for brain cancer research to £40m. The PM said she hoped this would ‘create a lasting legacy.’ Cancer Research UK will also contribute £25m to the Dame Jowell Brain Cancer Research Mission.

Currently 11,400 people in the Uk are diagnosed with brain cancer each year. Only 14% of these people survive for ten years or more.

According to BBC News there will also be an annual global conference, hosted in the UK, The Tessa Jowell global symposium bringing together scientists, clinicians and academics to discuss the research into and treatment of, brain cancer.

Tuesday 15th May 2018
Suffolk star in Autism's Got Talent
Jack Mitchell, 21, from Bury St Edmunds in Suffolk performed as one of the finalists in Autism’s Got Talent that took place at The Mermaid Theatre in London on Sat 12th May. Jack performed his own song ‘Where The Poppies Fall’, also playing his acoustic guitar. Jack is currently studying music at West Suffolk College.

The annual event was organised by AnnaKennedyOnline ‘forging a path to autism awareness’. Anna Kennedy OBE founded the charity after her own experiences with her two sons who have autism. After they were diagnosed she struggled to get the right help and education. In 1999 Anna decided to start up her own school, Hillingdon Manor, now a forerunner in specialist education provision.

According to Charity Today (www.charitytoday.co.uk) one of the many emotional parents in the audience said of the show: ‘To have a platform like this when the world is telling you your kid can’t do this and can’t do that is just incredible. People with autism are amazing and assets in our society.’

Thank you to featurepics for the use of their image.

7th June 2018
FestABLE: The UK's first ever specialist learning festival

On Saturday 2nd June, FestABLE took place at National Star College in Cheltenham. It is the first time a festival dedicated to specialist learning has been staged in the UK. There were all the usual aspects to a festival such as live music and chill out rooms and it was all fully accessible. Other features of the day included the country’s only wheelchair accessible hot air balloon and the opportunity to play with eye-gaze controlled computer games. There were also sessions on SEND reform, early autism intervention, EHC plans and removing barriers to achievement.

The award winning writer and actress Sally Phillips headlined the festival. Phillips has a son with Downs Syndrome and shared her experience and her views: ‘We are sitting on a treasure chest in the SEN world. Having a child with special needs enables parents to understand and appreciate the important things in life.’

Other guest speakers included the social care ombudsman Nigel Ellis and Max J Green who has 3500 followers on You Tube where he talks about his Asperger’s. There were also several parents and young people who spoke.

The event was a huge success- keep an eye out for next year’s FestABLE!

Thanks to FestABLE for the use of their logo.

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22nd May 2018
Funding for Art Classes in Bury St Edmunds
Gatehouse charity in Dettingen Way has been granted funding by the Suffolk Community Foundation to run a series of creative workshops. The weekly classes will cover card making, mosaics and silk painting to groups of 12-15 people. Gatehouse supports people living with dementia and they will be running the workshops with Art Branches. The classes are available to everyone and Gatehouse hope they will reduce isolation and improve people’s wellbeing. To find out more contact Gatehouse on 01284 703835.

Thank you to Clipart for the use of this image.

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26th April 2018
Paddy McGuiness on Holidays & Autism
Paddy McGuiness and his wife Christine have managed their first family holiday in four and half years.  Paddy took to Instagram to share his joy at being able to take his four year old twins, Penelope and Leo, who both have autism, on their first family holiday, along with their younger sister Felicity. Paddy encouraged other parents of children with autism not to give up hope.

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22nd May 2018
ME as Cause of Death
Last Friday (18th May) it was confirmed by a coroner that ME had contributed to the cause of young Merryn Crofts death. Merryn developed symptoms of ME at age 15 and after battling the illness for several years she died on 23rd May 2017, days after her 21st birthday.

Merryn’s family hope the results of the inquest will change attitudes to ME. It is only the second time such a conclusion has been made in the UK, according to the ME Association.

To find out more check out https://www.manchestereveningnews.co.uk/news/greater-manchester-news/young-woman-who-spent-years-14678759 and http://www.meassociation.org.uk/

Thanks to ME Association for the use of their image.

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28th April 2018
Partnership with Fred Olsen Travel
SuffolkCarersMatter is extremely happy to be working in partnership with Fred.Olsen Travel Agents, one of the UK’s most established travel agents.  As part of this partnership we are creating a family fun day with Fred.Olsen on their Taste for Travel day, which will take place on Sunday 12thAugust, 11am-3pm at Jimmy’s Farm

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